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Hearing is Believing

Reducing Barriers to Amplify the Patient Voice

By Kathryn Ticknor

Wed Mar 10 2021


Despite the many human-centered models and social listening capabilities, the healthcare industry still struggles to include the voice of the patient. Organizations need methodologies that reduce key barriers to listening – enabling them to create better products and services that deliver greater human value.


inVibe partnered with Rare Patient Voice to solve this challenge. In 2013, inVibe introduced the first-ever Automated Voice Response (AVR) platform to empower patients, caregivers, and physicians to tell their stories anytime, anywhere, and extract insights through linguistic analysis.

The same year, Rare Patient Voice was established to help patients share their experiences with organizations developing products and services.

These two organizations partnered to provide a way for patients to share their voices while delivering sharper insights, streamlining processes, and reducing costs. Working with the Rare Patient Voice patient panel, inVibe deployed their AVR solution to automatically conduct interviews with over 250 patients and caregivers across 15 diverse therapeutic conditions. The questions were designed to inspire people to share deeply personal stories. Here are a few examples:

  • What are some perceptions about your condition that make you cringe?
  • What do you wish people wouldn’t say about your condition?
  • If you could travel back in time and meet the person you were when you were first diagnosed, what advice would you give?

Download the PDF study here.


In less than two weeks, inVibe was able to automatically conduct hundreds of interviews and collect thousands of minutes of voice responses to a series of eight unique questions which evoked interesting and useful emotional content. For example:

  • Speech emotion recognition (SER) algorithms detected acoustic differences across therapeutic areas such as Cystic Fibrosis, Type I Diabetes, and Sickle Cell Anemia, indicating that even in chronic conditions, patients experience varying levels of engagement (activation) and positivity (valence) towards their journey.
  • inVibe’s linguistic experts noted meaningful differences in how patients described “How I Feel,” “What I’ve Learned,” and ultimately, “Who I Am.” These subtle patterns in word choices and intonation can help deepen our understanding of the patient experience as well as explain, and even predict behaviors.

In addition to capturing patient’s responses to thought-provoking questions, inVibe's linguistic experts leverage AI to extract powerful insights from the voice data. You can access all the patient stories that were captured at

About inVibe

inVibe is a full-service voice research company that helps healthcare organizations generate meaningful evidence and gain actionable insights by unlocking the signals in the human voice.

About Rare Patient Voice

Rare Patient Voice, LLC provides patients and caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services. RPV has over 100,000 patients across 485 different conditions.

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